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|| Tuesday, June 27, 2006 ||UPDATES
For a while, there was depression and desperation after Pyro's surgery because his doctors strongly recommended that he undergo radaiation treatments which would cost as much as his 2nd surgery.
We're only middle-class... and we've already spent a lot on my nephew's treatments. And it's really been exhausting to spend so much and see him in pain and still not know when and how this will all end.
Add to that the fact that the health and medical system here sucks... but I won't rant about that anymore since i've already cried to friends about it... and I am still able to be grateful because we're not among the POOR who know nothing and have nothing to spend on their own health problems.
Anyway, Pyro was masungit after his surgery. But he's continued to thrive. Though thin, he's not small (in height) for his age. His overall development doesn't seem to have been that compromised.
He's turning 3 years old soon. A friend of mine already sent him an advanced birthday gift :) Typically, he's requesting for a Jollibee birthday but since his radiation treatments would be every day for 30 days... and the expense of the treatments and the logistics of bringing him to St. Luke's everyday... we're still not sure if we can throw him that kind of party.
But I know he'd be happy in his own way on that day... after all, he's growing hair again :)
Py making pa-cute kay Ninong Jojo
|| Friday, June 09, 2006 ||AMAZINGLY ENOUGH
... Pyro gets discharged from the hospital today. This after a second operation that was truly bloody (he had to be transfused with 6 whopping bags of blood, and the doctors didn't have time to cross-match the blood because he was bleeding profusely).
His first surgery just 5 months ago had him confined for two weeks. But again, he amazed all doctors when he woke up soon after the operation... crying at the recovery room asking for his Mom, while all the doctors and nurses surrounded him and brought him to his waiting parents (after failing to stop his crying).
And when he gets home, he immediately had his yaya call my sister to tell her that he's already WELL and out of the hospital.
Oh, and he sings "Baby Love" all the time :) Turns out he loves the photo slide I made.
Bought cookies and cheese and different goodies for him yesterday... and gave the PINK Sponge Bob shirt and Baby Einstein instructional DVD I bought for him at Divi. Hopefully, he'd love the shirt enough and insist on wearing it (because his Mom didn't like the idea of her son wearing pink... then again, she wasn't too keen about me buying all those Yellow and Orange shirts for Py before either... and Py still looks best in the clothes I bought for him, hehe... SIL wants him to wear BLUE all the time and I haven't gotten around to telling her that Py is the hot-blooded type who'd look best in reds, yellows, pinks and oranges).
Felt my brother's depression over the expense. Am still juggling my own expenses so I can give him some money because our parents are running out of funds too. That and the fact that my Dad is also shouldering most of the expenses for my uncle. I can't imagine how my brother must be feeling... knowing he cannot actually finance all the remaining treatments for his son, and still not knowing if there'd be a good ending to all these.
Py has to undergo radiation treatments... because they can't scrape off all the cancerous gluck that's on his chest-bone. The radiation treatments will be very risky... because the cancer is too close to his heart.
And then there'd be more chemo treatments.
I tell my SIL that at least Py will have hair on his birthday (his utmost wish) but my SIL's face darkens, knowing that once the chemo treatments start anew, Py will lose his hair again... and thus will be depressed all over again.
Still, Py is still blessed because he's come this far. I'm just wondering, if he had ove a hundred guests for his 2nd birthday... how many kaya this time? :) I'm ordering a Sponge Bob birthday cake for him... and hubby will be in charge of the video... and am looking at giveaways now too.
Heck... every day he's still with us is a day to celebrate. And back in October, when all these started, we really didn't know if he'd be alive to see his 3rd birthday.
And he's still here.
And my heart is aching so badly now because the tears are threatening to come... so I'll stop now.
Thank you everyone, for the prayers.
God is Good.
|| Monday, June 05, 2006 ||A GREAT BATTLE FOR HIM TODAY
I don't know what time exactly he'd be operated on today, but am guessing he's already at the O.R. being prepped.
I've just finished texting friends and family again, people with busy lives and problems of their own, to pause for a while and say a little prayer for my beloved nephew. I know I won't be disappointed.
I trust his surgeon to do everything to make sure he survives this. And after all that he's been through, i'm not as scared anymore that he'll make it through the surgery (that, or am in denial). But the bigger question is: Will this be the turning point for the better days? Will we beat his cancer this time?
I got to touch his cancer. Well, sort of. See, the new growth is at the same area, but it grew downwards. And all the delays in the lab tests and scheduling made sure the tumor will grow aggressively yet again. And last Friday, when we visited Py to bring him the gelatin I make that he loves, I touched the protruding part of his chest where the tumor lies.
And when I say 'protruding', it's like a bone dislocated or broken at your arm... you can actually touch it and feel its shape.
I'm told that Py says the same prayer over and over. God, I pray You'll grant him his wish.
I painstakingly learned to create photo slides ala AVP for him, with songs like God Only Knows, Just the Way You Are, All You Need Is Love, Baby Love, Somewhere Out There and Tulog Na... featuring mostly his baby pictures (except for Tulog Na because that would seem morbid so I just got pictures off the internet of babies and animals sleeping).
I honestly thought it would delight Py.
But I felt it made him feel depressed... because he just watched it quietly, perched in my sister's arms. And you can see in his eyes that somewhere in that baby mind of his, wheels are turning and some things were too big for him yet to express.
I made sure not to include pics of him without his hair (and generally used pics of him up to 2 years of age)... and now am thinking if that was a mistake or not.
He's still cute you know. I felt that he was a little warm so his yaya got his digital thermometer. While my sis and cousins were playing 1-2-3 pass with his cousins (he'd sometimes mess with them by shouting 1-2-3-4-5 ting-ting-ting ala boxing/wrestling)... I got his temp.
I got sidetracked and didn't notice the beep but he did. He matter-of-factly removed the thermometer and told me, "Tapos na. 36"
:) His temp was 37.35 degrees Centigrade.